The Bharat NF Foundation
Information, Support, and Community for Neurofibromatosis (NF) in India
Access educational materials, join the supportive NF community, and receive timely NF news via email, while also connecting with expert NF physicians and contributing as a donor for NF support.
Our Mission
Enhance awareness on NF with parent groups, schools, medical fraternity and with public authorities.
Create a database of NF-supportive doctors, healthcare centers, and medical programs for foundation members.
Establish an NF community, providing support and resources to its members and families.
Organize and host educational meetings and webinars to provide valuable information and support.
Sensitize the public authorities about this rare conditions and seek concessions for the NF fraternity in various public schemes.
What is
Neurofibromatosis?
Neurofibromatosis(NF) is a rare genetic disorder that affects the nervous system, causing
tumors to develop on nerve tissue. NF is a group of genetic disorders that affect the nervous
system, causing the growth of tumors on nerves and various other complications.
tumors to develop on nerve tissue. NF is a group of genetic disorders that affect the nervous
system, causing the growth of tumors on nerves and various other complications.
Types :
- Neurofibromatosis Type 1
- Neurofibromatosis Type 2
- Schwannomatosis.
Each type is characterized by specific symptoms and genetic mutations. Diagnosis of
neurofibromatosis involves a combination of clinical evaluation, imaging studies (such as
MRI), and genetic testing.
neurofibromatosis involves a combination of clinical evaluation, imaging studies (such as
MRI), and genetic testing.
Get Help
At Bharat NF Foundation, we are dedicated to supporting
your journey to optimal health.
Get Involved
Individuals, groups, families, and advocates come together
to share support, knowledge, and strength. Our community is a
vibrant space that fosters connection and empowerment for
those affected by neurofibromatosis.
BE A PART
By becoming a part of our community, you contribute
to a network of understanding, compassion, and
shared experiences.
EVENTS
Explore the diverse range of events organized by the
Bharat Neurofibromatosis Foundation.
RESEARCH
Updates on ongoing research projects, breakthroughs,
and collaborative efforts that contribute to a deeper
understanding of Neurofibromatosis.
Frequently Asked Questions
Bharat NF Foundation is a non-profit organization dedicated to provide information, support and community for Neurofibromatosis(NF) in India. The foundation aims to improve the quality of life for those living with NF and advance research efforts to find a cure.
Neurofibromatosis (NF) is a genetic disorder that causes tumors to grow on nerves throughout the body. There are three types of NF: NF1, NF2, and Schwannomatosis. These tumors can lead to various health issues, including skin changes, bone deformities, and in some cases, hearing loss.
Symptoms of Neurofibromatosis vary widely among individuals, but common signs include skin changes such as brown spots, freckling in the armpit or groin, and the development of neurofibromas (tumors) on or under the skin. Other symptoms may involve bones, vision, and hearing.
NF1 is the most common type, affecting approximately 1 in 3,000 individuals worldwide. NF2 is rarer, occurring in 1 in 25,000 births, while Schwannomatosis is the least common. Awareness and early diagnosis are crucial for effective management of the condition.
NF is a condition which has the potential to involve several parts of the body. Children with NF generally need assessments by different specialist doctors. Surveillance is important as several features and complications of NF develop at different ages.
Currently, there is no cure for NF. Treatment focuses on managing symptoms and improving the quality of life for individuals with the condition. The Bharat NF Foundation actively supports research initiatives aimed at finding a cure and enhancing treatment options.
The Bharat NF Foundation offers a range of services, including support groups, educational resources, and financial assistance for medical treatments. The foundation also advocates for research to better understand NF and improve treatment options. By raising awareness, they strive to create a supportive community for individuals and families affected by NF.
You can contribute to the Bharat NF Foundation's mission by participating in fundraising events, spreading awareness, or making a donation. Your support helps fund research, provide assistance to affected families, and promote education about Neurofibromatosis in India.
Healthcare professionals can collaborate with the Bharat NF Foundation by participating in awareness campaigns, referring patients to the foundation for support, and sharing expertise to contribute to the overall mission of improving the lives of those affected by NF in India.
